6 new rare disease reference centers affiliated to the Institut Imagine

3 million French people are affected by a rare disease, i.e. 1 person in 20. 7,000 to 9,000 rare diseases have been identified to date. They require specialized care in reference centers that offer multidisciplinary and adapted care. 6 new reference centers for rare diseases of Hôpital Necker-Enfants malades AP-HP joined Institut Imagine in 2021, increasing the number of affiliated centers from 25 to 31.

Published on 04.03.2021

Research Acceleration

A virtuous loop around patients

Institut Imagine was designed to bring together physicians and researchers in a single location around patients. The objective: to go further and faster in the diagnosis, understanding of the disease, care and treatment of patients with genetic diseases through an approach combining research and clinical research.

Located at the heart of the Necker campus, Institut Imagine benefits from the expertise of the clinical services and reference centers for rare diseases of Hôpital Necker-Enfants malades AP-HP affiliated with it. These include a highly specialized hospital team with paramedical, medico-social, psychological, educational and social skills. They facilitate diagnosis, take care of patients, coordinate research work and act as contacts for patient associations.

6 new reference centers joined Imagine :

To learn more about the reference centers for rare diseases affiliated to the Institut Imagine 

To learn more about the research-care continuum between Institut Imagine  and Hôpital Necker-Enfants malades AP-HP 

To learn more about the reference centers and the rare diseases platform of Hôpital Necker-Enfants malades AP-HP